Getting Support and Keeping Hope Alive – for people with Mast Cell Activation Syndrome and Histamine Intolerance
When I was so ill with Mast Cell Activation Syndrome and Histamine Intolerance, there were many days that I literally wasn’t sure I would live. I would have anaphylaxis to smells.
And for years I had to hobble around with a cane because of excruciating joint pain.
I couldn’t sleep. And I could barely eat. I couldn’t even snuggle up with my husband because of the joint and fibromyalgia pain.
I didn’t have a lot of support. Needless to say, it was a lonely road.
Can you relate?
There were a few things that got me through my Mast Cell Activation Syndrome and Histamine Intolerance, though. And I want to share them with you. Because they may really help you too.
Community for those with Mast Cell Activation Syndrome and Histamine Intolerance
One thing I did was have a very small group of women on Facebook who were dealing with Mast Cell Activation Syndrome and Histamine Intolerance like I was. And it made a huge difference knowing that I wasn’t the only one dealing with these things.
Those ladies kept me going each and every time I wanted to give up. And every one of those ladies will always be near and dear in my heart for this.
And I want this for you, too – to know you aren’t alone and
for you to have compassionate community support!
And now we don’t just have a tiny group of people. We have a big community of Mast Cell Activation Syndrome and Histamine Intolerance peeps!
I’m so happy for all of us that we have over 5,000 amazing people in our Mast Cell 360 Facebook community!
If you haven’t joined the page yet, it’s such a lovely, warm, and supportive group of people.
We have free FB Lives most Mondays at 2pm.
If you want to join us, just go here and like the page to join the community and get updates on the free FB Lives
Hugs with Your Words Project for People with Mast Cell Activation Syndrome and Histamine Intolerance
On top of that, our community has been posting lovely pick-me-up messages for each other through what I call the Mast Cell 360 Hugs with Your Words Project.
Anytime you need, you can go to this page and read supportive words from others with Mast Cell Activation Syndrome.
It’s been a tough year for many of us for more reasons than just Mast Cell and Histamine issues!
And I always found that saying something kind to someone else uplifted me in my darkest days – so please leave a supportive comment for someone else too.
You can get your pick-me-up and leave kind words for others here:
Lastly, I wanted to share with you another practice that helped me have the courage, strength, and perseverance to keep healing.
The Dream Jar for people with Mast Cell Activation Syndrome and Histamine Intolerance
It’s called The Dream Jar.
Each year, throughout the year, I would write little things I dreamed for on pretty little strips of paper (pretty colors make me happy).
I would try to write down little, achievable dreams:
I dream to be able to snuggle up with my husband for 5 minutes.
I dream to be able to eat 1 more food.
I dream to be able to have a little less anxiety.
I dream to be able to talk to a friend for 15 minutes on the phone.
I would also always add a couple of bigger dreams that would take a long time:
I dream to be able to eat in a restaurant and not bring my own food.
I dream to be able to go back to graduate school.
I dream to build my healthcare practice.
I added one to the jar each week – folding it up and holding the dream in my heart while I put it in the jar. It was an emotional and spiritual practice for me – to keep up my optimism and hope.
If you’re curious, I had a really pretty Raku pottery jar with a lid. It looks similar to this:
And I used these colorful paper strips:
I was also jotting down new supplements and my symptoms most days and rating them on a scale of 0-5, with 5 being the worst it could be.
Here’s the trick, I didn’t ruminate on my symptoms. And I didn’t look back much, other than to look for patterns or what might have been triggering me.
On New Year’s Day each year, I pulled out my symptom journal and my dream jar. And I spent a little time in reflection.
First, I’d look at my symptom journal to see where my symptoms were a year ago. Because it was so hard to see any improvements day to day. Especially because I was still having symptoms.
But when I looked back, seeing that I had about 25% less anxiety or 50% less pain than the year before was a big deal!
Then I would take the papers out of the dream jar and open them one by one. With each one, if that dream had come true, I celebrated with joy.
And if that dream hadn’t come true yet, I held it to my heart with hope and optimism, and I placed it back in the jar.
This practice really kept my spirits up. And I wanted to share it with you!
You can modify this practice any way you want to make it work for you.
I had many practitioners tell me they had no idea how I was still going because I was so sick.
I found there were 2 major things that kept me going so I could heal.
Keeping Your Hope Alive
I see this in my clients too who make it through.
This is why I want to invite you to:
- Join our Mast Cell 360 Facebook Community.
- Read and add your words to our Mast Cell 360 Hugs with Your Words Project.
- Start a Dream Jar and write your dreams down – Keep your hope alive!
The answers are out there. You have to keep going long enough to find them.