Mast Cell Activation Syndrome Symptom Survey Mast Cell 360

Do You Have More Than Just Histamine Intolerance? Take the Mast Cell Activation Syndrome Symptoms Survey

The symptoms of both Mast Cell Activation Syndrome and Histamine Intolerance can vary widely and involve multiple body systems. It is easy to confuse the two.

Histamine Intolerance, though, is only an issue with too much Histamine.

Whereas Mast Cell Activation Syndrome is much more complex.

Your mast cells are present in a majority of tissues in your body. And they can release hundreds of inflammatory mediators (chemicals).

The symptoms in Mast Cell Activation Syndrome (MCAS) tend to be wider spread and more significant than in Histamine Intolerance.

I’ve found that many people who think they only have Histamine Intolerance in fact also have Mast Cell Activation Syndrome.

This was true for me, too. For years I thought I only had Histamine Intolerance.

When I read about Mast Cell Activation Syndrome, I thought that certainly couldn’t be me.

Lowering histamine foods helped me a lot. And supporting the 4 histamine degrading pathways (like Diamine Oxidase and Methylation/HNMT) helped me as well. But my symptoms didn’t completely clear up.

Then I was knocked flat after getting a mild concussion, taking several trips, and getting some injuries. I just couldn’t bounce back.

I finally realized I have both Histamine Intolerance and Mast Cell Activation Syndrome.

I’ve created a survey to help you see if MCAS is something you should look more closely at.

In this post you’ll find:

Wondering If You Might Have Mast Cell Activation Syndrome?

Take a look at the symptoms below.

The important thing to remember is that you definitely don’t have to have all of these symptoms to have Mast Cell Activation Syndrome.

Usually, people with Mast Cell Activation Syndrome (MCAS) have at least 2 systems that are affected. For example, you may have digestion and skin symptoms. Or you may have insomnia and chemical sensitivities.

Some people may only notice symptoms in just one system without being aware of issues in other systems.

It’s important you know that this blog post is for informational and educational purposes. It’s not meant to treat any health condition or to be prescriptive for anyone.  If you have any medical condition, it is critical you work under the care and guidance of a licensed medical provider.

Symptoms of Mast Cell Activation Syndrome

The symptoms of Mast Cell Activation Syndrome can be divided by body systems. They can include any combination of the symptoms below.

Read these symptoms to see if you relate with at least 2 categories.

  • Systemic Symptoms:
    • Overall fatigue and feeling bad (malaise)
    • Food, drug, environmental, and chemical sensitivities
    • Chills / sweats
    • Sense of being cold all the time
    • Inflammation
    • Swelling
    • Swollen lymph nodes
    • Weight changes
  • Musculoskeletal Symptoms:
    • Osteoporosis and osteopenia (even in young people)
    • Arthritis that moves around
    • General muscular and bone pain
    • Hyperflexible joints
    • Degenerative disk issues
  • Skin Symptoms:
    • Flushing
    • Hives / itching
    • Easy bruising
    • Reddish or a pale complexion
    • Burning sensations
    • Dermatographia (persistent redness or white marks after scratching skin)
    • Slow healing of skin
    • Hair loss
    • Rosacea, Psoriasis, Eczema (all skin conditions)
  • Cardiovascular Symptoms:
    • Feeling faint or fainting
    • Chest pains
    • Fast heartbeat
    • Heart palpitations
    • Dizziness and lightheadedness when standing up
    • Low blood pressure
  • Digestive Symptoms:
    • Mouth burning
    • Gum inflammation
    • Diarrhea / Constipation
    • Cramping or abdominal pain
    • Nausea
    • Vomiting
    • Reflux
    • Trouble swallowing
    • Throat tightness
    • Malabsorption
    • Bloating
    • Elevation of liver enzymes
    • High cholesterol
    • Food sensitivities and food allergies
    • Irritable bowel syndrome
    • Obesity may occur due to fat metabolism and absorption issues
  • Brain and Nervous System Symptoms:
    • Brain fog
    • Short term memory issues
    • Trouble recalling words
    • Trouble with attention
    • Insomnia
    • Temperature changes
    • Headaches
    • Migraines
    • Dizziness
    • Tinnitus
    • Depression / loss of pleasure in life
    • Anxiety
    • Nerve pains
    • Numbness
    • Tingling and numbness in arms and legs
  • Lungs and Respiratory Symptoms:
    • Congestion
    • Coughing
    • Shortness of breath
    • Wheezing / Asthma
    • Increased mucous production
    • Post-nasal drip
    • Sinus congestion
    • Frequent throat clearing
    • Sinus or nasal swelling
    • Nasal polyps
  • Eye Symptoms:
    • Eye pain
    • Redness
    • Trouble focusing
    • Inflammation in the eyes
    • Blurry, itchy, watery, or irritated
  • Reproductive System Symptoms:
    • Endometriosis
    • Painful periods
    • Male and female infertility
    • Hormonal imbalances
  • Urinary Tract Symptoms:
    • Inflammation of tissues
    • Burning
    • Pain with urination
    • Urinary tract infection (UTI) type symptoms
  • Anaphylactic or Anaphylactoid Reactions (can be life threatening):
    • Difficulty breathing
    • Itchy hives
    • Flushing or pale skin
    • Feeling of warmth
    • Weak and rapid pulse
    • Nausea
    • Vomiting
    • Diarrhea
    • Dizziness and fainting
  • Other conditions that may be related to Mast Cell Activation Syndrome:
    • Diabetes
    • Fibromyalgia
    • Chronic Fatigue
    • Interstitial Cystitis
    • Crohn’s disease
    • Irritable Bowel Syndrome
    • Ehler’s Danlos Syndrome (EDS)
    • Postural Orthostatic Tachycardia Syndrome (POTS)
    • Autism Spectrum Disorders
    • Autoimmunity such as:
      • Rheumatoid Arthritis
      • Lupus
      • Hashimoto’s Thyroiditis
      • Multiple Sclerosis

That’s a lot of possible symptoms and correlated conditions! Remember, this is because the mast cells are in nearly all tissues in your body.

The specific symptoms you have will depend on where in your body the mast cells are being affected.

Mast Cell Activation Syndrome Symptoms Survey

This symptoms survey is for informational purposes only and is not meant to diagnose or treat any condition.

This is a survey on Mast Cell Activation Syndrome Symptoms I developed for both my Master’s Thesis and Doctoral Dissertation.

This Mast Cell Activation Syndrome Symptoms Survey is based on the work of top experts in the field and my own clinical observations of thousands of people with Mast Cell Activation Syndrome (Afrin L. B., 2016) (Afrin L. B., 2013) (Akin, Valent, & Metcalfe, 2010) (Theoharis C.Theoharides, et. al., 2012).

The higher your score, the more likely you are to have Mast Cell Activation Syndrome.

If you have a score over 50, you should probably investigate whether you might have Mast Cell Activation Syndrome.

Grab a pencil and a piece of paper to keep track of your answers.

Please rate each symptom below on a scale of 0 to 5.

0 = you do not experience this symptom
1 = symptom is very mild
2 = symptom is slightly bothersome
3 = symptom is moderate
4 = symptom is severe
5 = symptom is very severe

  1. Fatigue      
  2. Sweats    
  3. Feeling cold                                   
  4. Flushing           
  5. Weight gain                                    
  6. Weight loss                                    
  7. Appetite increase                           
  8. Appetite decrease    
  9. Rashes
  10. Itching
  11. Hair thinning/loss
  12. Irritated eyes
  13. Light sensitivity
  14. Tinnitus                        
  15. Ear pain
  16. Ear congestion
  17. Mouth burning
  18. Mouth sores
  19. Dental decay
  20. Allergies
  21. Itchy throat            
  22. Sore throat
  23. Post-nasal drip
  24. Swollen lymph nodes
  25. Painful lymph nodes
  26. Pain in left upper abdomen
  27. Swollen nasal passages
  28. Swollen sinuses
  29. Cough
  30. Trouble catching breath
  31. Wheezing
  32. Sleep Apnea
  33. Dizziness                       
  34. Lightheadedness           
  35. Weakness                       
  36. Vertigo                       
  37. Fainting                        
  38. High blood pressure
  39. Low blood pressure
  40. Heart palpitations
  41. Chest pain not from heart attack
  42. Bloating or gas                       
  43. Abdominal pain                 
  44. Queasiness                        
  45. Nausea                       
  46. Vomiting                       
  47. Diarrhea                       
  48. Constipation                       
  49. Reflux                       
  50. Pelvic pain                       
  51. Endometriosis (women only)
  52. Decreased libido               
  53. Erectile dysfunction (men only)
  54. Muscle pain                       
  55. Arthritis                       
  56. Joint hypermobility
  57. Osteoporosis / Osteopenia
  58. Headaches                       
  59. Tics                       
  60. Tremors           
  61. Seizures                        
  62. Unexplained mood changes
  63. Anxiety                       
  64. Panic                                    
  65. Depression                       
  66. Anger                        
  67. Psychosis                             
  68. Memory issues                   
  69. Trouble concentrating
  70. Difficulty finding words
  71. Painful periods (women only)
  72. Hypothyroidism
  73. Hyperthyroidism
  74. Easy bruising/bleeding
  75. Slow healing
  76. Get infections easily
  77. Food sensitivities
  78.  Chemical sensitivities          

Total your score:

What to Do If You Have a Lot of Symptoms Related to Mast Cell Activation Syndrome

I hope your score came back low. That would be good news!

But, if you scored 50 points or more, I strongly recommend you look further into Mast Cell Activation Syndrome.

The next thing you should do is fill out this form below to get your FREE 7 Most Common Root Triggers in Mast Cell Activation Syndrome Report

Sign Up Below To Get Your Free Report!

Find out the underlying issues that commonly cause Mast Cell Activation Syndrome and get a better understanding which ones are affecting you.

* indicates required

Learn More About MCAS and where to start in these posts:

If the Free Report and the posts make a lot of sense in your case, you will want to look closely at Mast Cell Activation Syndrome.

Without addressing the root triggers in Mast Cell Activation Syndrome, this condition unfortunately will get worse over time.

However, if you do start supporting your mast cells in the right ways and in the right order, you can get so much better.

I once was bedridden and could barely walk, even using a cane because of Mast Cell Activation Syndrome. I had no quality of life.

But I figured out how to beat this!

And now, I run a very busy practice and can easily walk over 2 miles. This is a completely different life I’m living. That’s why I’ve dedicated my life’s work to helping others like you with Mast Cell Activation Syndrome get their lives back.

Are you interested in working with a practitioner 1:1?  

If so, click the button below to read more and see if the Mast Cell 360 Clinic is a good fit for you.

Success Stories from others with Mast Cell Activation Syndrome and Histamine Intolerance

Hearing others’ success stories kept me hopeful when I was so sick. I want to share these with you to help you see there is a lot of light if you have Mast Cell Activation Syndrome. I was one of the sickest people I have ever met. But now I feel very healthy. These people have regained their health too. I hope these stories help you!

Before I met Beth, I could not get rid of chronic Lyme symptoms and I was having so many reactions to foods and environmental insults. I felt like I’d never get better. I didn’t understand Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance so I was mainly going after Lyme and heavy metal toxicity symptoms using herbs, homeopathics and supplements. Turns out I was taking and eating a lot of things (like ferments) that kept me from getting better. I believe now that the Lyme had no longer been an issue for years, and it was actually undiagnosed MCAS as well as underlying issues caused my metals, molds and genetic mutations.

I really wanted to work with someone who understood genetic analysis and how that related to the symptoms I was having. After serendipitously speaking with one of Beth’s other clients I suspected I could have MCAS and wanted to address it.

Through working with Beth, I now understand my genetic issues. I know how to take care of myself around food and environmental triggers. And I now know that I still have heavy metal and mold toxicity to work on to feel 100%.

Working with Beth’s Mast Cell 360 program has helped me understand MCAS and how oxalates and lectins cause flares for me. I also understand what works and doesn’t work for my body, given my genetics. I am now a new person. I can imagine my future again and I’m taking steps to rebuild my life.

The first thing I noticed were less mast cell reactions. I had been having constant burning mouth and red neck. I even broke into hives when I showered. This went away after about 8 months. My brain fog is nonexistent most of the time (that was a huge issue I was dealing with). My neurological inflammation improved, joint pain improved, and my energy has massively improved. My anxiety and agoraphobia are gone too. My life has changed to nearly normal. I still have improvements to continue to make, but I think I mostly need to increase my stamina which has been on hold for 8 years.

When I had my Initial Appointment with Beth, she believed it would take me about 18 months to really feel better. She was right on target! It’s been 16 months and the relief from my symptoms has exponentially grown in the last few months. I will be forever grateful to Beth for putting me on the road to wellness.

Joy headshot2017 Mast Cell 360
– Joy E.

Metamorphosis. This word best describes my experience with Beth O’Hara. In the two years we have been working together, she has made a tremendous impact on my life. When I first came to Beth, I was struggling every day with MCAS and the accompanying excruciating fibromyalgia pain, migraines, joint pain, severe fatigue, depression, anxiety, panic attacks, and sinus problems. I also have Type 2 diabetes. Just getting the dishwasher loaded was impossible and I wasn’t able to drive myself. I had seen dozens of doctors and been on every medication imaginable, but I seemed to continue to get worse.

Beth recognized the food triggers that were causing my symptoms and helped me make changes to how I was eating. She also reviewed my genetics and explained in clear language that I could easily understand how my genes might be affecting my health and helped me with action steps on how to address genetic variants. With these changes, my fibromyalgia and rheumatoid arthritis have decreased tremendously and my sinusitis has almost ceased to exist. My A1C is even down!

My Mast Cell Activation Syndrome is much better managed, and I’m able to drive and even enjoy life again. Life-changing. . .

Kathy H. Testimonial
– Kathy H.

Beth has a keen ability to know when introduce the next level or process and she has a wealth of knowledge and the tools to fit my individual needs, she knew exactly when to bring them on board. With her guidance, we incorporated supplements and food changes based on my DNA, along with changes I needed to make in my life to support my health, both body and mind. My histamine issues and inflammation are significantly better, and I am enjoying life in a whole new way.

Beulah H. Testimonial
-Beulah H.

When I was diagnosed with colorectal cancer, I knew I had to make some changes in my life. After going through radiation, chemo, and surgery, I decided it was time to take charge of my health. I knew I had histamine sensitivity, however, the information available was overwhelming and I was not sure how to figure out what was right for me. I turned to Beth O’Hara to see how genetic testing and personalized supplementation could help. Beth was able to analyze the DNA test results and help me to figure out the best foods and supplements for a healthy lifestyle for me.

Beth has been a wonderful help in navigating through the healing process. I feel so much better! Her vast knowledge, empathy, and calming demeanor have been such a blessing!

Tricia B. Testimonial
-Tricia B.

I highly recommend Beth. She is a true health detective. She combines genetic analysis, symptoms and medical test interpretation and figures out what foods, supplements and mind/body approaches are best. She understands how things work in the body and that everyone is different. She offers a very personalized approached at a very reasonable cost. There are many people out there doing genetics, but Beth’s approach makes her far better than the rest. She has succeeded where other doctors have failed.


-Vicki Y.

I went to see Beth when I was having several areas of health concerns and wanted more holistic answers. She asked really great questions and listened with an open mind and an open heart, which helped her get to the bottom of what was causing my health issues. Beth can integrate information from DNA reports, lab results, discussions, observations, her knowledge of how the body works, nutrition, and lifestyle to provide individualized solutions that work for me. My histamine levels are way down, and I’m feeling much better after working with Beth. I recommend her for anyone who is experiencing health concerns and would like a holistic approach that addresses the whole person!

Liz J. Testimonial
-Liz J.

My experience has been that her knowledge of individual genetic tendencies allows her to pinpoint contributing factors in many complex health issues, particularly those in which histamine issues and inflammation were a contributing factor. Beth has also been an invaluable resource for me due to her extensive network of competent and skilled practitioners who, like her, are on the cutting edge of new ways to be healthy and whole in mind and body. I have seen significant improvements in my energy, neurotransmitter balance, and sleep and have even been able to come off some of my medications.

Alan H. Testimonial
-Alan H.

I came to Beth in chronic pain and fatigue that began with a shoulder injury that was not healing. I was barely sleeping at night and my body was full of inflammation. I’d been through a round of traditional PT and believed I was eating healthily, but I was just not getting better no matter what I tried. With Beth’s guidance, I began to recognize and understand MCAS and other underlying hyper mobility issues that I had. I began the MC360TM protocol, got the right testing and began taking supplements that were gradually bringing me back into balance.

The supplement recommendations were also a game-changer for me, and I was finally able to break out of my long cycle of pain and inflammation. Beth truly is on the cutting edge of this field, and I am so grateful to her for it. I’m still healing, but it’s been such a huge transformation that I can barely even remember those days of chronic pain, sleep deprivation and hopelessness now.

Gail T.
-Gail T.

Are you interested in working with a practitioner 1:1?  

If so, click the button below to read more and see if the Mast Cell 360 Clinic is a good fit for you.

I’d love to hear from you now! How did you realize you have Mast Cell Activation Syndrome?

Do you want to share your Mast Cell Activation Syndrome score to add to the research? If so, you can add your score in the comments below.

References

Afrin, L. B. (2013). Presentation, Diagnosis, and Management of Mast Cell Activaiton Syndrome. In Mast Cells (pp. 155-231). Nova Science Publishers.

Afrin, L. B. (2016). Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity. Bethesda: Sisters Media.

Akin, C., Valent, P., & Metcalfe, D. D. (2010). Mast cell activation syndrome: Proposed diagnostic criteria. Journal of Allergy and Clinical Immunology, 1099-1104.

Theoharis C.Theoharides, et. al. (2012). Mast cells and inflammation. Biochimica et Biophysica Acta (BBA) – Molecular Basis of Disease, 21-33.

Image Credit: https://en.wikipedia.org/wiki/File:The_Allergy_Pathway.jpg

Comments

  1. Lilian

    Scored 30 ,My main issues have been hives and itching which at first happened almost everyday.Now it’s every 2days and it’s sometimes accompanied by headaches when the hives are severe or even angioedema. A few times too much sweating especially at night .It will be an year in March and really not a pleasant experience. I just finished a pack of DAO enzyme supplements but I cannot tell any change.

    I recently moved to Dubai from Kenya and hoping this issue can finally come to an end.

    Tying to eat low histamine foods as much as possible ..it’s frustrating and I really need help. Skin test I had done last year -nothing really was picked up and also my weight has reduced .

    Beth ,please help me out .
    Regards

    1. Deanna Shank

      Hi Lilian,
      Yes, we know it can be quite challenging.This blog has many resources for you to dive deeper. Please check out this article with the Mast Cell 360 Low Histamine Diet Foods List and a 3 phase eating guide. https://mastcell360.com/the-mast-cell-360-starter-low-histamine-foods-list-why-you-shouldnt-use-most-of-the-online-histamine-foods-lists-if-you-have-mast-cell-activation-syndrome-or-histamine-intolerance/.

      You can also reach the Mast Cell team here https://mastcell360.com/contact/ ~Deanna MC Team

    1. Beth O'Hara

      Hi, Donna, if you would like more information or if you would like to sign up for our waiting list for new clients, I’ll be sending out announcements later this year about when case review spots are available again. By joining our email list, you can get the case review announcement and lots of tips. You can sign up here: https://mastcell360.com/waiting-list

  2. Lisa

    I scored 120! How do I sign up for the waiting list? I signed up to receive your emails. I am 19 years old and have seen many doctors regarding my symptoms, but I believe histamine and/or mast cell activation syndrome may be the cause.

    1. Beth O'Hara

      Hi Lisa, We would love to have you join the practice. I’ll be sending out announcements later this year about when case review spots are available again. Are you on the email list yet? If not, you can get the case review announcement and lots of tips by signing up here: https://mastcell360.com/waiting-list. This will let you know when appointments become available. Thank you so much for reaching out.

  3. Jane

    I scored 83. I was diagnosed with SIBO and Histamine intolerance 3 years ago, and I have not been able to find my root causes yet. Thank you Beth for making this information available. I cried when I read your story, to know I’m not alone and someone else understands what I’m going through is priceless. I now believe I need to pursue MCAS. Hopefully with this information I can start to heal.

    1. Beth O'Hara

      Thanks for reaching out, Jane. I wish you all the best for your healing.

      1. Elfie Caya

        My score was 130. I counted not just my current symptoms but symptoms over the past two years since being diagnosed with Athsma, chronic urticaria and dermatographism. I am just learning about MCAS and its dawning on me that the symptoms I’ve experienced my entire life could be due to this. I’ve spent so long feeling hopeless and overwhelmed by this “mystery” inflammation. I finally have hope that one day I will feel at home in my body. I have no idea how to find specialists in my area but I will start with dietary & lifestyle choices, keep doing my research and advocating for my health.

        1. Suz, Mast Cell 360 Team

          Hi Elfie,
          I’m glad to hear you have hope. That is so important! If you ever need a little boost, feel free to visit our Hugs with Words Project here:
          https://mastcell360.com/mast-cell-360-hugs-with-our-words-project-for-people-with-mast-cell-activation-syndrome-and-histamine-intolerance/

          Here is a list of MCAS familiar doctors you can look into. Please note that we have not fully vetted this list. Because we don’t know everyone on this list, we don’t share this as a referral. It is a resource we hope will be helpful for you when you are deciding what will best fit your needs. I hope it helps!

          https://mastcell360.com/wp-content/uploads/2020/11/List-of-Providers-Recommended-by-Members-of-the-Mast-Cell-Activation-Disorders-Forum.pdf

          Suz

    2. Diane

      I scored 152. Is that even possible? Most of my symptoms are in the gut and I have trouble sleeping and I continue to struggle with diet and other issues. Things have gotten really bad in the past year. There is no one in my area that can help me with HI or MCAS. I figured this out on my own.

      I do get I think, weekly emails from you.

      Thank you for all of your information. I guess I won’t be able to speak with you until 2021.

      Something tells me more and more people are getting this syndrome.

      1. Beth O'Hara

        Hi Diane,
        High scores like the one you experienced are not uncommon. Please feel free to email us using the contact us link and we can send you some more information about doctors in your area that work with MCAS and HI.

  4. Gerri Hynes

    I scored 188!! Yikes. Not that I’m surprised given my history. 🙁

  5. Erica Fletcher

    I scored 137 and was fairly conservative on my numbers. I have been to tons of doctors over the years and spent thousands and thousands of dollars and never seem to make much progress. I would be very interested in your program

  6. Leif Costigan

    There are multiple cases of long-term withdrawal side effects with the drug Montelukast after cessation. My son is one of them, he is 7 yrs old. I am noticing that histamine intolerance seems to be a link. People are being diagnosed with pans but this seems to be more of a histamine problem due to symptoms that seem similar to high histamine production. The drug could be linked to histamine. What are your thoughts?

    1. Suz, Mast Cell 360 Team

      Hi Leif,
      These are good questions, but really complex discussion and more that I can properly address here. Briefly, it depends on whether someone has just Histamine Intolerance or just Mast Cell Activation Syndrome, or both. Montelukast has been a life saver for some, but you’re correct that it isn’t right for everyone. PANS has multiple possible root causes, and histamine issues are often more of a downstream effect than the root cause.
      Beth

  7. Phyllis

    I scored 218! Oh my God.
    My reactions come with very inflamed submandibular lymph nodes. The enlarge to the size of golf balls on both sides. Comes with Chronic fatigue too. Just destabilizes my entire system for several hours, sometimes the whole day. It could be when I eat and other times when I haven’t eaten. I react to cleaning liquids also.
    🙁

  8. Ella

    Arrg…212…not surprised at all, Ive been researching mcas for awhile and it really connects all the dots for me. Im actually relieved to know whats causing all my crazy reactions to just about everything! I have so many symptoms…some r easier to live with than others. The hard thing is fighting with supposed ‘medical professionals ‘ who r clueless!!

  9. Beverly Mandell

    Score was 156. I have had a problem with candida for decades but once I received the Covid 19 vaccine severe tinnitus started along with eye twitching and facial numbness. I am really committed to eating clean and getting to the root of my issues with any and all suggested treatments. This has been life altering for me and so thankful I found this website!

    1. Suz, Mast Cell 360 Team

      Hi Beverly,
      Thank you for sharing your experience. I’m sorry to hear you experienced those reactions as a result of the vaccine. I’m sure you’ve talked to your doctor about this, and am hopeful he/she has put you on the right road to recovery. Thanks for letting us know the site has been helpful!
      Wishing you all the best!
      Suz, Mast Cell 360

  10. Mary Ellen Diefendorf

    Score 136 and I didn’t even finish the list. There is no one in my area that I know of . What are your recommendations?

    1. Suz, Mast Cell 360 Team

      Hi Mary Ellen,
      There are a few options you can look into.
      1. Here is a list of MCAS familiar medical doctors. https://mastcell360.com/wp-content/uploads/2020/11/List-of-Providers-Recommended-by-Members-of-the-Mast-Cell-Activation-Disorders-Forum.pdf
      Please note we have not fully vetted this list, so we share this as a resource, not a referral. You’ll want to check out anyone on this list to see if they will be able to meet your needs.
      2. You might consider working with a practice like Mast Cell 360. We are a telehealth practice and conduct all appointments via video conferencing.
      3. You can get started with some work on your own. Beth has put together two Master Classes with one more coming later this summer. The ones currently available are for the Top 8 Mast Cell Supporting Supplements and Nervous System Reboot. Later the mold course will be coming out. You can find all the classes here: http://www.mastcell360.com/courses

      Best regards,
      Suz, MC360

  11. Marina

    Same..I scored 200,have many issues,but that part submandibular is so painfull and stiff neck ,clodged ears,tinnitus etc, I have feverish feeling 24/7 end many other issues,I am in hell.And I dont have doctors for MCAS in my country 🙁

    1. Suz, Mast Cell 360 Team

      Hi Marina,
      I’m so sorry to hear you are experiencing this. I encourage you to maintain hope that your answers are out there. TeleHealth is becoming more available and you may be able to find someone who can help you in this way. I wish you all the best.

  12. Denise

    I scored 112. I’m doing a whole food, plant based healthy lifestyle for autoimmune gut dysbiosis and feeling lost on why I cant recover. Some days feel ok but most of the time dealing with numerous annoying chronic issues some are getting worse. How do I know if mold is growing inside me? I’ve recently developed chronic mild headache with occasional sharp stabbing pain in back and lower abdomen, gas and a shoulder injury that won’t heal after over 1 year PT. I try to help and encourage others since so many others are sick and dealing with various health challenges but some days it’s all I can do to get myself through the day. I would like help and answers.

    1. Suz, Mast Cell 360 Team

      Hi Denise,
      I’m so sorry to hear you are facing these challenges. Beth was a vegetarian for a while, but as she became aware of various food intolerances such as oxalate intolerance and lectin intolerance, she realized that certain plant-based foods were making her worse. You may want to start with a food journal to see what foods may be causing some of these issues for you. For Beth, lectins were a bigger problem than oxalates. Here’s an article on lectins if you want to learn more: https://mastcell360.com/lectins-low-lectin-foods-and-the-mast-cell-connection-for-those-with-mast-cell-activation-syndrome-or-histamine-intolerance/

      And if you are concerned about mold, you may be interested in first reading this article on testing on our site: https://mastcell360.com/mycotoxins-and-mold-one-of-the-biggest-root-triggers-for-mast-cell-activation-histamine-intolerance/

      And if it turns out your are dealing with mold tox, you might be interested in the MC360 Precision Mold Master Class: http://www.mastcell360.com/mold-course

      I hope this will help give you some ideas to explore. Be sure to also talk with your doctor with any questions or concerns.

      Wishing you all the best!

  13. Kris

    I scored a conservative 174. I too cannot find anyone in the Spokane WA area that has even heard of this. I clicked on your links above but they take me to your recipe page and I can’t seem to find your list of providers. But so far I am very grateful for the wealth of info I have found on your website.
    Thanks so much for your dedication to all of us suffering with this!

    1. Suz, Mast Cell 360 Team

      Hi Kris,
      Thanks for letting me know the link is taking you to recipes. We have some lists or providers we can share with you as a resource. Just reach out to support using the contact us page on the blog: https://mastcell360.com/faq/ (scroll to almost the bottom and choose the “I’ve checked everything above and I still need help!” tab). Our team will be happy to provide you with those lists! Thanks for your interest in Mast Cell 360.

  14. ch.

    Scored 119. Probably MCAs another piece of the puzzle diagnosis: spasmophilia, metal toxicity, IBS, leaky gut, dysbiosis, Lyme disease, Allergies, Food intolerances, Depression, ADHD, Chronic Fatigue Syndrome, EMF’s sensitivity, Mold toxicity, C-ptsd, the list goes on… I’ve been feeling ill since a child and It’s been more than ten years that I am working actively in trying to get better. But it feels as like a fly catch in an upturned glass bumping against the glass desperately trying to be on the other side, free! Severe EMF’s intolerance is the most debilitating because I can’t really follow online courses without bad aggravation of my symptoms. Would you know any aware practitioners in Europe? I am based in french part of Switzerland but not many people know about this stuff around here.

    1. Jamie, Mast Cell 360 Team

      We are so sorry to hear you are suffering. If you would like to send an email to support@mastcell360.com we’d be happy to send you a list of possible practitioners to explore if any are a fit for your needs.

  15. Kalia

    42. Main problem is eczema that has been treated multiple times with antibiotic ointments/creams etc. The first time it went away but now it has been multiple months when it hasn’t gone away. I took a oral antibiotic (Bactrim) and it magically disappeared but Dermatologist said it was the anti-inflammatory properties that made it go away. Now the hard work begins to try and fix this.

    1. Jamie, Mast Cell 360

      Hi Kalia, I’m sorry to hear that you have been dealing with eczema. Often what is being displayed on the skin is a sign of what is happening on the inside of the body, and can be associated with MCAS. You might find the following resources helpful for informational and educational purposes on your healing journey:
      https://mastcell360.com/making-a-mast-cell-activation-syndrome-flare-up-plan/
      https://mastcell360.com/mast-cells-and-mast-cell-activation-syndrome-101-what-to-know-if-you-have-mast-cell-activation-syndrome-or-histamine-intolerance/
      https://mastcell360.com/low-histamine-foods-list/

      We wish you the best on your path to health!

  16. Anna Hopkins

    Scored 62. I have been living diagnosed with MCAS for over six years now. I literally cried when I found the most amazing doctor who looked at me after much evaluation and said, “I am so sorry you have had to go through all of this for so long and never be heard or believed”. I burst into tears. She is still my doctor after all these years. And though I am well controlled with my MCAS compared to where I was it is a daily lifestyle that I do not waiver from to still come in at a 62. I feel healthier than ever before the last six years. But, it is ongoing work and evaluating every 3-4 months what is and isn’t working or needs tweaking so to say. And my doctor is also the one who told me about Dr. Afrin and MCAS 360 soon followed when I read his book and started tuning in to the FB lives with he and Beth. I will miss Beth and her wisdom and compassion so much. But I know there is a great team still here to help us continue to find our best health ongoing! It’s so nice to be believed, seen, and heard! Thank you to you all!

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